Category Archives: Uncategorized

please pray

I know I’ve asked you before, but please, please, please pray for Ashley. She needs it. Her mommy needs it. Her daddy, brother, and sister need it. I don’t know how they do it.

I can’t give much background because that would take like billions of words to tell you all that this little girl has been through, but she is from my hometown of Longview, TX. Her 5th birthday is coming up. She is a transplant patient. Her mother is currently at a hospital in Nebraska with her. She is not doing well. Her dad, brother, and sister are still in Texas. Please pray on behalf of her and her family.

Advertisements

Leave a comment

Filed under Uncategorized

CMV

Hello friends. It’s been a while since I’ve given you a health update on Kanon, and it’s about time. Especially now that we have some answers.

After our appointment in February with the neurologist, he ordered some blood work. If you remember from my post, it was A LOT of blood. They tested for lots of different “stuff.” Some of the things they were testing for were very scary things, and most of the things they were testing for I didn’t even know about. We finally received the results of his blood work the end of May. It was positive for CMV. That stands for cytomegalovirus. You can do a google search for congenital CMV to find information, but I will share what I have learned after researching and talking to our doctors.

CMV is a very common virus. Most children get it by the time they are 2 years. Another peak time to contract it is teenage to young adult, and by the age of 40 years, 80% of adults in the U.S. have it. If you do contract it you may never know because a lot of times it is “silent,” meaning you never show signs or symptoms. Even if you do show symptoms you may never know that it is CMV because the symptoms are common to other viruses as well and include: fever, sore throat, fatique, and swollen glands. Once you have CMV, it’s there for life. It is usually not a problem.

The time when it is a problem, is when you contract CMV for the first time while you are pregnant. It can cross the placenta and attack your baby. But, even then, it is not always a problem. The majority of the time the mother contracts CMV and passes it along to her baby, and no one would ever know because neither one of them show symptoms. However, some babies are born with symptoms.

Temporary Symptoms Include:

Liver problems

Spleen problems

Jaundice

Purple skin splotches/Rash

Lung problems

Low birth weight

Seizures

Permanent Symptoms/Disabilities:

Hearing Loss

Vision Loss

Mental Disability

Small head

Lack of coordination

Seizures

Death

Pretty serious stuff. Kanon had the purple splotches at birth, and he has hearing loss. Praise God this is all he has! Now CMV is progressive though. So of the babies that are born showing NO symptoms, 5-10% will develop symptoms months and years later. And of the babies that are born showing symptoms (which is Kanon), up to 90% have neurological abnormalities later in life. His hearing could continue to decline until it is gone. His vision could do the same thing.

BUT so far he still has full hearing in his right ear. We had a repeat MRI done in June to compare it to the one in November 2009, and it showed no changes! Which, besides the Lord completely healing him, this is the next best news. It gives us hope that what is done is done. It will not progress. And just today we had another appointment with the neurologist, who thought he looked great. He said Kanon had a very mild case of CMV and seems to be developing just fine. He also said we don’t need to go see him for 10 months!!! And we don’t need to have another MRI for another 2 years!!! We will be having his vision tested shortly and are trying to get hearing test scheduled for sooner than November (which is how long the wait is right now).

Again, if we had never had that x-ray that led to that CT scan that led to that MRI during his hospitalization with meningitis, we would NEVER had known anything was wrong. He has been completely “normal.” We haven’t noticed anything “off” developmentally. He is the happiest, most smiley baby ever. He has been such a joy. So content. Never really cried or screamed until now, when he runs out of food or wants a big boy cup. Really, we can’t get enough of this boy.

Here are a few more facts on congenital CMV:

-CMV is the most common congenital virus in the U.S.

-CMV is as common a cause of serious disability as Down Syndrome, Fetal Alcohol Syndrome, and Neural Tube Defects

-every hour congenital CMV causes one child to become disabled

-about 1 in 150 children is born with congenital CMV

-about 1 in 750 children is born with or develops permanent disabilities due to congenital CMV

It is transmitted through bodily fluids, and hand washing is the only preventative measure. More on this later.

Feel free to ask me any questions. I’ll answer to the best of my ability.

We love The Manon, and praise God He gave him to us like he did. For our good, and for His glory!

Leave a comment

Filed under Uncategorized

Specifics

I am sure you all have been praying for all the people in Haiti. Whenever some disaster hits or even if one (or more) of my friends is going through a hard time I always have this urge to help. This urge to drive to Arkansas to take care of a dear friend and her family as they survive through a hard pregnancy. An urge to write a check to a family that needs it. And an urge to fly a plane myself and go pick up all those children in Haiti. It’s obvious all of these desires are unrealistic. The one thing I can do is pray. Which, if I’m honest, used to seem like the second best thing to do – like, “well, since I can’t do this I guess I’ll just pray.” But it is not JUST praying. And it is NOT second best. It is the BEST thing I can do. I have really fallen in love with praying for people. And not just, “please, be with the people in Haiti,” but specific things. It is good to pray specifics. The Lord hears our prayers. So I want to share a couple of specifics things you could be praying about in regards to the Haiti earthquake. The first is cut from an e-mail received from our church. The parents of one of our church members runs an orphanage in Haiti. I have left out names because I didn’t know if it was okay to post them.

“We have one nanny that is deceased and the orphanage needs her body to be removed.

The orphanage has no drinkable water.

In addition they need:

formula for babies

medicines

IV fluids (one child is currently on an IV)

charcoal to cook

diesel

cash to buy supplies if they find them. They are running out of cash and there are no banks open to get cash, so it needs to be delivered by someone already on the ground or by helicopter.

 

Others are beginning to rob them of what supplies they do have.

There are helicopters flying over the orphanage and they have made a sign on the roof that says they are an orphanage and need help.

The staff is also working to get together all the paperwork for each child that has an adoptive family in a way that it can be attached to their body if there is an opportunity to evacuate.”

 

Since this e-mail we have received word that they have received help from the Salvation Army and that 30 UN soldiers arrived. Praise God! I am still not sure of the evacuation of the children. Please keep this orphanage in your prayers.

Another specific request come through a friend who sent an e-mail on behalf of a family in her city. Again not knowing what I can share I will simply share this.

There is a 12 year old boy that legally belongs to a family in Arkansas. He was supposed to be with them 6 months ago. But the system is corrupt. They have received word that he survived. Please pray that he will be found and united with his family in the States.

 

Thank you all for your prayers. Now, please leave a comment if you know of specific ways we can be praying for the people of Haiti. May His Kingdom be furthered!

 

Edited to add: The 12 year old boy is now with his parents!  Thank you for your prayers.


Leave a comment

Filed under Uncategorized